Why sharing lived stories matters especially to those who are just starting the Dementia Journey
1. They turn information into real-life understanding.
Professional advice explains what may happen; lived stories can show what caring can actually feel like day to day.
Hearing how another carer dealt with changes in communication, behaviour, relationships, identity or accessing services can help someone recognise and understand situations they are experiencing themselves.
2. They reduce isolation and help people realise they are not alone.
LGBTQ+ carers can sometimes feel that their circumstances are different from those represented in mainstream dementia information.
Reading the experiences of other LGBTQ+ people, partners and chosen families can provide reassurance, recognition and a valuable sense of community.
3. They allow one person's experience to help the next person on the journey.
A carer may discover practical approaches through experience and what worked and what didn't, what they wish they had known earlier, or where they eventually found support. Sharing those lessons can give someone at the beginning of their caring journey useful questions to ask and possible options to explore.
Granny thinks lived stories shouldn't replace professional advice; they should complement it which some professional guidance cannot provide, ie the voice of someone who has actually travelled the road.
These are accepted proven reasons why Granny encourages members to "Share Their Storys"
Let’s support community dialogue together.
Help us to help you
Thank you
Granny Smyth
